Experiencias de mujeres jóvenes colombianas mastectomizadasun estudio etnográfico

  1. Celmira Laza-Vásquez 1
  2. María Elena Rodríguez-Vélez 1
  3. Jasleidy Lasso Conde 1
  4. Alix Yaneth Perdomo-Romero 1
  5. Roland Pastells-Peiró 2
  6. Montserrat Gea-Sánchez 2
  1. 1 Grupo de investigación «Salud y Grupos Vulnerables», Programa de Enfermería, Universidad Surcolombiana, Neiva, Departamento del Huila, Colombia
  2. 2 Grupo de Estudios Sociedad, Salud, Educación y Cultura (GESEC), Facultad de Enfermería y Fisioterapia, Universitat de Lleida, Lleida, España
Revue:
Enfermería clínica

ISSN: 1130-8621

Année de publication: 2021

Volumen: 31

Número: 2

Pages: 107-113

Type: Article

DOI: 10.1016/J.ENFCLI.2019.09.015 DIALNET GOOGLE SCHOLAR

D'autres publications dans: Enfermería clínica

Objetivos de desarrollo sostenible

Résumé

Objective To explore the experiences of a group of young women in relation to the reconstruction of their breasts after mastectomy. Method Focused ethnography, performed in the League against Cancer- Huila Section (Colombia). Through casual sampling oriented by criteria, semi-structured interviews were conducted with eight young women (diagnosed at 45 years or earlier) with breast cancer (reconstructed or not reconstructed after mastectomy) until saturation of discourse. Data collection was carried out between August-November 2017, after the endorsement of the Ethics Committee and the consent of the participants. Data was analysed using the thematic analysis technique after being anonymised. Results Three issues emerged in the women's discourses: The social stigma of being a young woman with breast cancer; learning to live with a body transformed by disease and treatment, and surviving, which is the most important thing. Conclusions Being a young woman, and suffering from breast cancer implies a diversity of changes that permanently alter the lives of women and their bodies. Women prioritise survival in order to take care of others over breast reconstruction. At a healthcare level, the cultural and gender perspective must be incorporated to design individualised nursing interventions that contribute to better care.

€ Voir financement

Information sur le financement

A las mujeres que participaron en el estudio, por compartirnos sus experiencias de vida. A la Liga contra el C?ncer-Seccional Huila por el apoyo recibido, y a la Universidad Surcolombiana y la Universitat de Lleida por la financiaci?n del estudio.

Financeurs

Références bibliographiques

  • B. Stewart, C. Wild World cancer report 2014 IARC Press, Lyon (2014)
  • R.L. Siegel, K.D. Miller, A. Jemal Cancer Statistics, 2017 CA Cancer J Clin, 67 (2017), pp. 7-30
  • F. Bray, J. Ferlay, I. Soerjomataram, R.L. Siegel, L.A. Torre, A. Jemal Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries CA A Cancer J Clin, 68 (2018), pp. 394-424
  • World Health Organization Global Health Observatory World Health Organization, Geneva (2018)
  • S. Fernandes-Taylor, J.R. Bloom Post-treatment regret among young breast cancer survivors Psychooncology, 20 (2011), pp. 506-516
  • E. Adams, L. McCann, J. Armes, A. Richardson, D. Stark, E. Watson, et al. The experiences, needs and concerns of younger women with breast cancer: A meta-ethnography Psychooncology, 20 (2011), pp. 851-861
  • E. Coyne, J. Wollin, D.K. Creedy Exploration of the family's role and strengths after a young woman is diagnosed with breast cancer: Views of women and their families Eur J Oncol Nurs, 16 (2012), pp. 124-130
  • S. Crompvoets Prosthetic fantasies: Loss, recovery, and the marketing of wholeness after breast cáncer Social Semiotics, 22 (2012), pp. 107-120
  • N. Ehlers Tekhnē of reconstruction: Breast cancer, norms, and fleshy rearrangements Soc Semiot, 22 (2012), pp. 121-141
  • E.V. Cruz, G. Higginbottom The use of focused ethnography in nursing research Nurse Res, 20 (2013), pp. 36-43
  • R. Campbell, S.M. Wasco Feminist approaches to social science: Epistemological and methodological tenets Am J Community Psychol, 28 (2000), pp. 773-791
  • P. Liamputtong, D. Suwankhong Therapeutic landscapes and living with breast cancer: The lived experiences of Thai women Soc Sci Med, 128 (2015), pp. 263-271
  • M.Q. Patton Qualitative research & evaluation methods: Integrating theory and practice SAGE, Los Angeles (2015)
  • R. Hernández Sampieri, C. Fernández Collado, P. Baptista Lucio Metodología de la investigación McGraw-Hill, Ciudad de México (2014)
  • M. Hammersley, P. Atkinson Etnografía: métodos de investigación Paidos, Barcelona (1994)
  • J.I. Ruiz Olabuénaga Metodología de la investigación cualitativa Universidad de Deusto, Bilbao (2012)
  • V. Clarke, V. Braun Teaching thematic analysis: Overcoming challenges and developing strategies for effective learning The Psychologist, 26 (2013), pp. 120-123
  • Ministerio de Salud de Colombia Resolución 8430, por la cual se establecen las normas científicas y técnicas de la investigación en salud. (1993)
  • Organizaci ón Panamericana de la Salud y Consejo de Organizaciones Internacionales de las Ciencias Médica Pautas éticas internacionales para la investigación relacionada con la salud con seres humanos, Cuarta Edición, Consejo de Organizaciones Internacionales de las Ciencias Médicas (CIOMS), Ginebra (2016)
  • M.P. Carvalho, A.S. Senkevics “Third World” Girls: Gender Childhood and Colonialism Open Journal of Social Sciences, 5 (2017), pp. 125-138
  • E. Meacham, J. Orem, G. Nakigudde, J.A. Zujewski, D. Rao Exploring stigma as a barrier to cancer service engagement with breast cancer survivors in Kampala, Uganda Psychooncology, 25 (2016), pp. 1206-1211
  • D. Trusson, A. Pilnick Between stigma and pink positivity: Women's perceptions of social interactions during and after breast cancer treatment Sociol Health Illn, 39 (2017), pp. 458-473
  • L. Nyblade, M. Stockton, S. Travasso, S. Krishnan A qualitative exploration of cervical and breast cancer stigma in Karnataka India BMC Womens Health, 17 (2017), p. 58
  • S.L. Manne, N. Topham, L. Kirstein, S.M. Virtue, K. Brill, K.A. Devine, et al. Attitudes and Decisional Conflict Regarding Breast Reconstruction Among Breast Cancer Patients Cancer Nurs, 39 (2016), pp. 427-436
  • K. Higgins, J. Gillis, J. Williams, L.B. Martin, M. Bezuhly, J. Chorney Women's Experiences With Flap Failure After Autologous Breast Reconstruction: A Qualitative Analysis Ann Plast Surg, 78 (2017), pp. 521-525
  • R. Fu, M.M. Chang, M. Chen, C.H. Rohde A Qualitative Study of Breast Reconstruction Decision-Making among Asian Immigrant Women Living in the United States Plast Reconstr Surg, 139 (2017), pp. 360e-368e
  • I.M. Young On female body experience: «Throwing like a girl» and Other essays Oxford University Press, Oxford (2005)
  • S. Báez-Hernández Breast cancer: A new aesthetics of the subject NWSA J, 21 (2009), pp. 143-165
  • J.M. Mason Surgical intervention: Critiquing the representation of breast cancer surgery in US women's magazines J Am Cult, 36 (2013), pp. 312-322
  • D.A. Tetteh The breast cancer fanfare: Sociocultural factors and women's health in Ghana Health Care Women Int, 38 (2017), pp. 316-333
  • M. Merino Navarro Attitudes and Decisional Conflict Regarding Breast Reconstruction Among Breast Cancer Patients [Article in English, Spanish] Enferm Clin, 29 (2019), pp. 54-56
  • F. Holland, S. Archer, J. Montague Younger women's experiences of deciding against delayed breast reconstruction post-mastectomy following breast cancer: An interpretative phenomenological analysis J Health Psychol, 21 (2016), pp. 1688-1699
  • G. Coll-Planas, M. Visa La cicatriz (in)visible. La representación del cuerpo en blogs de mujeres con cáncer de mama Polit y Soc, 52 (2015), pp. 487-507
  • R.B. Somogyi, A. Webb, N. Baghdikian, J. Stephenson, K. Edward, W. Morrison Understanding the factors that influence breast reconstruction decision making in Australian women Breast, 24 (2015), pp. 124-130
  • R. Blanco Sánchez Imagen corporal femenina y sexualidad en mujeres con cáncer de mama Index Enferm, 19 (2010), pp. 24-28
  • L. Sischo, P. Martin The price of femininity or just pleasing myself? Justifying breast surgery Gender Issues, 32 (2015), pp. 77-96
  • E. Pérez Ciencias y tecnologías del cuerpo: la práctica de la tecnología de los implantes mamarios R. Ibáñez, E. Pérez (Eds.), Cuerpos y diferencias, Plaza y Valdez, Madrid (2012), pp. 131-152
  • K. Davis Reclaiming Women's Bodies: Colonialist Trope or Critical Epistemology? Sociol Rev, 55 (Suppl 1) (2007), pp. S50-64
La source de données: Dialnet